Category Archives: Articles

[Rev.] or the Jew behind the brackets …

wpid-picsart_1397415706610.jpg

[Rev.] Romulus Campan LTh (Hons), FDScMH (Forensic), CertEd, QTS,
PgCert Religion, Spirituality & Mental Health,
PgCert Special Psychopedagogy,
PgCert Autism & Asperger’s
Chair, Disability & Neurodivergence Staff Network – BSMHFT

Not all real-life stories have a beginning; especially those born from echoes of generational suffering and pain.

It hurts endlessly and helplessly, running from echoes of hope-lost parents’ and grandparents’ tears, loving me, hating me, mourning me ahead of my escape from the same pain and suffering generating the screams of my untimely beginnings.

I never understood until today, the reason for carefully picking the fluffs scattered all over my blanket and eating them; I know now, it was the insolence of roughly round little objects impossible to integrate with the rectangular fold of my crib’s side covering blanket, neither white nor blue…

They were tasteless, oddly textured, eaten nevertheless by a weird little boy more disturbed to sleep by the unfitting randomness of an old the blanket’s fluffs, then by the TV sound of some program I wasn’t supposed to see in my parents’ living/bedroom…

A few decades later, waking up in a bed I didn’t at all plan before getting drunk the evening before, desperately understanding that no shower could wash down a pang of guilt I never felt before, I remembered the religious pamphlet someone threw under the door of my shared, four-bed nurse-hostel.

The message was simple: “Cast your burdens onto Jesus, he’ll carry them for you”. Remembering from my Catholic altar-boy years that praying is getting on your knees and talking to an unseen deity, I threw myself by the side of my bed and cried my heart and burdens out onto this Jesus, probably the first time in my life until then, when I was able to have a meaningful “conversation” with someone I called “God” …

“God, if you exist and hear me, I desperately need your help…”

And I went on and on calling God, Jesus, the Father, the Holy Spirit/Ghost, the Holy Trinity, anyone and everyone I hoped might have listened.

You don’t need too much psychotherapeutic training to know how honest tears and words of acknowledgment can alter the dynamics of hopelessness. That de-traumatizing experience became an anchor so deep into my life’s timeline, that it transformed it from linear into circular, around a newfound religious dedication.

One must remember that just some weeks before my drunken nightmare my uncle called, to share a family secret so deep, that it emerged only after my maternal grandmother’s death. You see, I was told that we were Jewish; suddenly, at that moment, a murky world of stories meant to cover the truth about our roots, fell apart, with the real stories of what truly happened unraveling themselves still, to this day. But that’s for another chapter…

A few more years -and three children- later, I started my formal, five years Licentiate in Theology university training, which forever changed my spiritual landscape. Because against all hopes and plans to become a supercharged Minister of the Word, exposure to the rigors of academic research, Hebrew, Greek, Latin and Systematic Theology forced this student to allow mathematical-precision analysis and logic, into the world of “simple” faith. The road to understanding the derailment and hijacking of a genuinely Jewish, messianic sect flocking around the hopes to see the newest prophet preaching another dreamed miracle of deliverance, in this case from the Roman oppression, was long.

Having lost in the first year of my theological seminary, the twins we prayed for, had a cataclysmic effect on my belief in any form of love from the God I was training to serve; but I marched on “in the footsteps of Jesus”.

I became a regional missionary for a Hungarian Protestant denomination, an ordained minister of the sacraments through an international ministry and Eastern European representative for a non-denominational organization promoting and researching a Christian scientific, creationist worldview. My/our TV and radio programs were broadcast all over the world by religious and secular stations, being invited in Europe and the US by churches, theological seminaries, universities and schools to teach, present and debate on such subjects.

I previously mentioned “simple” because and against opposing opinions, faith is a continuous exercise of accepting something no one has ever proved, closely followed by another exercise, that of denying literally the obvious, what anyone could experientially prove.

I believe therefore that faith is an exercise of denial, self-inflicted on an individual or mass level, in order to maintain a perpetual pseudo-reality, in face of an experientially obvious one.

Realization wasn’t easy; going back and forth between the certitude bringing doubt, having to check for myself everything the Apostles claimed, and the guilt-ridden doubt of having become an apostate, condemned to burn for eternity in a lake of fire.

Because contrary to popular belief, Christianity is a religion of “love” for the surprisingly simple-minded majority only, living a carefully constructed denial of selectively placing their spiritual desperation in the illusion of a “love” to be found in far less verses, than the threats of eternal damnation from their “son of David, son of God” …

You see, Christianity is supposed to be the finalisation/fulfillment of Judaism through a once and for all sacrifice of David’s heir. At a closer look, however, Judaism, the religion of a deity redeeming his people through vicarious sacrifices of animals by a dedicated priesthood to act on behalf of Israel, has been taken over and de-judaized, to suit the imperialistic agendas of succeeding conquerors beginning with Constantine.

Nevertheless, and regardless of all efforts by the New Testament writers, their Jesus character’s ancestry doesn’t match the rigorous expectations set out in the Jewish major prophets, causing, therefore, the ab-ovo collapse of the whole system.

However still, I have been left an agnostic minister, with the moral responsibility to care for every evil-hating soul, which is ultimately the only requirement of Judaism, in a nutshell…

I declined around 2009 to continue being the Eastern European representative/director of the aforementioned international creationist ministry, having built an effective regional representation involving religious and secular universities, television and radio programs, many still broadcast around the world to this day. The reason was simple; I find it intellectually, morally and ethically impossible to promote and defend, anything logically and/or rationally untenable.

I continued as a government translator/interpreter and a qualified teacher, having specialised over the years in special Psychopedagogy – Defectology, a postgraduate training giving skills in teaching children/adults with innate or acquired Neurological/Sensory disorders.

A very important part of my professional duties was a project I initiated and carried out over several years, designed to raise awareness of anti-Semitism and about the Holocaust, through visits organised to the Budapest Holocaust Memorial, located in the former Pava Street Synagogue. However, by the end of 2009, we arrived as a family at the point where we couldn’t afford the rent previously affordable through my ministry support.

This is how by mid-2010 I became the 24/7 carer and personal assistant of a middle-aged, British gentleman with hemiplegia; away from my family until 2014, relearning and applying the fundamentals of care from a clinical, social and psychological perspective, having to rely sometimes on nothing less than my combat medic experience for organising life moments running away and returning/revolving around a life forever changed by a massive stroke.

Fully reuniting in 2014 with my family raised the question of spirituality, of living our Jewish heritage in a community. I met an amazing young Rabbi, who rekindled the hope of continuing what we so much loved with our South-East Hungarian Synagogue Fellowship.

In vain as it turned out because the U.K.’s rabbinical Council decided that our papers aren’t up to their expectations of orthodoxy, and our Jewishness isn’t the same as “theirs”, expecting from us to basically undergo a reconversion procedure…

I’m still hurting, even after five years, to be told that I have to prove my Jewishness either by producing original ancestry papers or by reconversion. It still feels like what the Nazis wanted by chasing and scattering our family all over Romania, burning every trace of our Jewish heritage, might have succeeded.

I will forever be thankful to the rabbi for not letting me go before wrapping me in my ancestors’ Tallit Gadol (prayer shawl) and Tefillah, holding my hand and reciting together the Shema, every true Jew’s call for our long due God…

Here I am, therefore, a mutilated Jewish soul, having travelled through valleys of shadows of death, awaiting alone in Leonhard Cohen’s larger than life spiritual shoes “for the miracle to come”, tired of all the maestros telling me it’s Mozart, when in reality it’s the same, lame sound of some cheap bubble-gum …

I do however, consider myself privileged to work as a forensic MH practitioner, with specialists from all areas of mental health clinical care, being also as Chair of a dynamic Disability and Neurodivergence staff network, raising awareness and driving changes to benefits staff with neurodivergent conditions and their families.

But what does [Rev.] actually mean?

It stands as a bold statement of a well-earned professional dignity, in respect however of my [temporary(?)] inactive status.

And to silence the ignorant choir of self-appointed “specialists” and “experts”, “autism advisors/consultants/etc”, I have put on display my credentials, the infrastructure of my oftentimes merciless assertiveness.

As I am writing I hear and see, the voices and faces of my patients for whom my years of study and dedication could become steppingstones onto a future away from a criminal justice system which has only started to learn, that maybe mishandling due to misunderstanding, of an autistic person in distress, could well be considered “assault against a vulnerable individual” as automatically as their autistic-reflex reaction is hastily considered “assault against a law enforcement officer” condemning an innocent individual to a stigmatised life …

I remember a couple years before the confusing end of the second millennium, an American missionary kindly offered his Microsoft Encarta 95 Encyclopaedia. As I inserted the disc into the drive, I was surprised to hear the inimitable voice of Nelson Mandela, quoting one of his own thoughts, which as years passed by, became more and more embedded in the foundations of my own thought process, a beacon of resilience for the painful years to come, a root and fruition to withstand the atrocities committed against us, the vulnerable and the oppressed, by the laws created for, and by those wearing their Orwellian, face-stomping boots:

“Let there be justice for all.”

 

*If you would like to support my work please consider donating at paypal.me/RevRomASD

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“Autism Spectrum Dependency Classification System v 1.0” -proposal-

[Rev.] Romulus Campan, FDScMH (Forensic), LTh (Hons), CertEd, QTS,
PgCert Religion, Spirituality & Mental Health,
PgCert Special Psychopedagogy,
PgCert Autism & Asperger’s
Chair, Disability & Neurodivergence Staff Network – BSMHFT

Previous attempts to classify the Autism Spectrum (AS), failed to understand the ‘trees’ within the ‘forest’ of unknown dimensions, which has become generally known as Autism Spectrum Disorders.

I am unwilling to concede ‘disorders’ to ‘conditions’ simply because after countless episodes of bullying and harassment from mostly ignorantly unqualified individuals and groups, in this case having found in their “autism activism” a venting platform for complex seemingly psychological issues, I have decided to initiate and maintain liaison only with academically and/or experientially qualified entities, willing to participate in existing efforts to rescue and restore the Autism narrative from the chaos caused by such incompetent “movements” and individuals, the vast majority of whom have spawned from Judy Singer’s disastrous, “NeuroDiversity” brain-child, born as an “idea” explained by the book’s Amazon abstract as follows:

“The word itself was just one of many ideas in this work, her 1998 Honours thesis, a pioneering sociological work that mapped out the emergence of a new category of disability that, till then, had no name.” (italics mine)

Surprisingly, however, as I have detailed in a previous essay, Singer’s careless inference with the medical field mutated into an increasingly conflicted understanding of disability, revealed in a recent article as “The problem with the expression “People with Neurodiversity” is that it turns Neurodiversity into the latest fashionable synonym for Disability.”

The necessity to re-classify the AS should be obvious to all ‘navigators’ of a “system” which could be best depicted as a beach playground where infantile participants more and more aggressively, try to destroy and rebuild their newer and newer sand-castles of a derailed activism, fortunately washed away by oftentimes feeble, but nevertheless professionally and/or experientially much more accurate attempts to defend the Autism narrative from becoming another defunct sociological experiment.

The real reason in my opinion for this constant threat for the wellbeing of millions of autistic individuals and their families worldwide, including my own, is the collapse of observational behaviourism as exclusive instrument in understanding Autism from its ontogenesis throughout its lifetime progression, having left behind a Medi-Social Model identifiable void, where oftentimes hazardous and dangerous psychiatric interventions are being argued against by an equally hazardous reactivist revisionism, frightened apparently that “as long as autism – which is not a mental ill-health condition – remains in the psychiatric diagnostic manuals, there will continue to be those who use this to justify their attempts to find a cure.” (italics mine) (Chown & Leatherland, 2018).

I cannot, in all honesty, understand how and why would 25 autistic individuals, many of whom academics, be afraid that millions of individuals with autism, living themselves, their families and/or care environments under the constant threat of self-harm, wandering and uncontrollable violence, would be offered a treatment, a cure?

I have developed the Autism Spectrum Dependency Classification System, as a response-proposal against the confusions caused by the changes in the past years to the two, main disease categorisation systems, the DSM and the ICD, also the chaos in the less formal use of “functionality-based labels”, the now literally demonised HFA or High-Functioning Autism and LFA or Low-Functioning Autism.

As I have already hinted throughout my social-media presence, I consider dependency the most practical means of conveying the level of functional autonomy of an Autistic -or any other- individual, integrated with a simple, universally applicable sub-categorisation system, by which dependency is in direct proportion with the identified comorbid symptoms, as an individualised, non-numerical quotient of support needed for the maximum achievable autonomy.

By using the concept of “comorbid symptoms” I acknowledge Autism as a monolithic disorder featuring the below explained intellectual/mental, neurodevelopmental, physical and mental-health/psychiatric conditions not as independent co-morbidities (regardless of their also non-autistic existence), but as comorbid symptoms sharing origins simultaneously or developmentally with their Autism root.

The following codes have been used:

ID/MR – Intellectual Disability / Mental Retardation

LD – Learning Disabilities: Dyslexia, Dyspraxia, Dyscalculia, Visual Stress Syndrome, SPD (Sensory Processing Disorders), Tourette’s Syndrome, etc.

PHD – Physical Disabilities (observable and/or non-observable): Motor-functional (Fibromyalgia, CFS, Spinal Disorders, MS, etc), Diabetes, Metabolic Syndrome, etc.

MHD – Mental Health Disabilities: Clinical Anxiety & Depression, B/EUPD, Pathologic Demand Avoidance, etc.

ASD Dependency Cat System

I am publishing this first version of my proposal, relying in all honesty on my personal, academic and professional integrity in regard to having created this system without any deliberate intention to copy or otherwise unethically inspire from anyone else’s previously published thoughts or ideas. Should the reader have any questions or concerns about this, I would respectfully appreciate being informed about it, to address any issue as soon as possible.

This initial proposal version wishes to become a collaborative effort with -as previously mentioned-academically and/or experientially qualified peers. Should you be interested in collaborating, please DM me at https://twitter.com/Rev_Rom_ASD, keeping in mind that I reserve myself the right to extend any further collaborative invitations.

 

Proposing the “Medi-Social© Model of Disability and Neurodivergence” I

[Rev.] Romulus Campan FDScMH (Forensic), LTh (Hons), CertEd-QTS,
PgCert Religion, Spirituality & Mental Health,
PgCert Special Psychopedagogy,
PgCert Autism & Asperger’s

Medi-Soc Mod Neurodivergence Title Pic 1The Medi-Social© Model of Neurodivergence Logo-Created by Romulus C.

The Medi-Social Model of Neurodivergence is an alternative to the prevalent Medical and Social models of Neurodivergence, applicable to the following, commonly accepted as, Neurodivergent conditions:

The Medi-Social Model of Neurodivergence could also provide a replacement to the imbalanced Psychiatric perspective of the Medical Model and the derailed Social Model Militantism, proposed by the “Neurodiversity Movement” and its ‘biodiversity’ dilettantism.

This Model would holistically and intersectionally consider Neurodivergent conditions in their Medical and Social complexity, with a realistic emphasis on understanding these conditions through also considering the invaluable lived-experience of individuals living with these conditions, and/or the accumulated co-participative experience of their families, caregivers.

I can boldly assert that the structural elements of a Medi-Social Model of Disability and Neurodivergence have always been present in what has been known as the Medical Model, which could have never existed without its Social aspects, proven by the well-known existence of Multidisciplinary Teams, mandated by legislation to safeguard each step of an individual’s journey through their Recovery.

A Medi-Social Model of Disability and Neurodivergence would open the possibility of exploring new and necessary horizons of how all participants in these multidisciplinary teams, such as the individuals themselves, their caregivers, their clinical team, their social worker team etc, could change the Recovery Pathway Dynamic from a Clinical-Team-dependant hierarchical, to a Multidisciplinary Co-participative/Intersectional.

The Stockholm Syndrome Symptomatology of Neurodiversity Militantism

me 1I was diagnosed with Autism Spectrum Disorder (ASD) in June 2017. As I wrote in the “About…” tab of my blog, “Over 50 years of a rather odd life, came to a sudden realisation, with all the clicks and cogs falling to their right places.”

Little did I know at the time, that the sudden realisation was only the preamble of what is as I write, the crawling to a frightening light, of a child I can’t even remember, and whose only ‘happy’ memory is a set of painted wood blocks, neatly ordered in a slide-top box, taken out every day to became the same ‘castle’ in which no toy was ever planned to live, or play.

If I would have to give a name to the featured picture, it would be “Leave me alone”. I never liked being photographed, being looked at; probably because everyone expected me to look back, to show the same colloquial interest which never interested me.

I’ve never understood humans, the reasons why they kept asking stupid questions such as “what would you like to be when you grow up”, just to laugh themselves to urine when the five years old replied “Pensioner, because you don’t have to do anything, and the mailman brings you the money”. Mind you, I was raised by my maternal grandmother, savvy pensioner taking her grandson everywhere, mainly to the popular coffee parlours famous for their Italian expresso machines, dripping the golden bath for my -always at hand- thirsty sugar cubes.

I never had “friends”. My acquaintances could be anything and anyone, from my grandmother’s gossip team, my wooden blocks, collectible Gillette razor blade boxes, match boxes, my blind, talcum powder smelling masseurs (muscular atrophy), to the whole plethora of colleagues blessed or cursed to have met me.

Before being entirely absorbed in 2017 by the Neurodiversity “movement”, my life took a similar, dramatic self-discovery turn in 1990, when following a partly societal, partly family heirloom inherited, devastating guilt crisis, I had “my sins taken away by Jesus” and my civil liberties by a neo-evangelical church. The “love story” ended following nearly two decades of a genuinely successful international ministry, inclusive of two major academic degrees and two postgrads, radio, TV and conferencing.

My fondest memory of the time is a story by the manipulative “pastor” of the emotionally controlled congregation, about an Eastern European dictator, asked by a journalist how is it possible for the nation to adore him, while he basically took away all their rights? Apparently, the dictator asked for a living chicken and to the utter shock of the journalist, he plucked the agonising bird’s feathers clean. Having spread a handful of breadcrumbs on his boots, he put the poor bird down, which obnoxiously started to eat them. “You see?” the dictator said, “you can take away everything from your population, still they’ll mindlessly follow you as long as you give them enough to survive on.”

Keep this in mind…

Returning now to the reason for a title which may stir instinctive reactions I’m expectantly aware of, I remember in 2017 leaving my Autism assessor’s office with a maelstrom of emotions I did not expect, dragging behind myself the barely finished, mostly incoherently  mumbled reply to my diagnosing psychiatrist’s question, “How do you feel now, knowing what you felt all along?”

“Confused a bit…” I said, “both liberated and frightened…” because I did not want to tell her out of respect, that my first thought as I mentioned in my relevant post was “angry”, for all the reasons I describe there.

I was sitting in my car, trying to breathe, nearly crying, or maybe laughing as I usually do at funerals, trying to make sense of 54 years passed by, of a life weirdly writing itself like backwards with each new year.

At that time, I was well aware of Neurodiversity (ND) as an umbrella term for all neurodivergent conditions, but also as a “movement”, which started to ‘absorb’ me deeper and deeper, for all the good reasons I understood and identified with, absolutely in love with Silberman’s brilliant “Neurotribes”, the cosy fellowship of kindred spirits and high hopes to change the world for the better.

Another year of academic effort rewarded me by meeting autistic academic  Luke Beardon from whom I’ve learned that learning’s prime asset is critical thinking, at both its giving and receiving ends.

It was around that time, when I started looking at my autism with a receiving critical attitude, of questioning if self-acceptance and its projected extrapolation through the less and less “diverse and inclusive” Neurodiversity movement and some of its most “impetuous” proponents, is the right way forward.

I witnessed horrified and in utter dismay, mobs of self-proclaimed ND “advocates”, advocating nothing else but basest attitudes of hunting into silence perceived “dissidents” for taking themselves the liberty to think, having hijacked and mutilated much of what Neurodiversity would have been good for, oftentimes turning it into a lucrative merchandise, and a gathering ground for attention seeking individuals trying to force acceptance of their “valid” “selfDx”, so desperately necessary to stabilise the insecure reflection of themselves trembling together with the shallow social waters they are looking into.

Traveling for a while with the group, I more and more felt the unease and suspicious dread of a deja-vu which scarred what should have been the best two decades of my life.

I also met “the enemies”; scared, sometimes scarred autistic thinkers bravely unwilling to forfeit their liberty of thinking for belonging anywhere, exhausted yet hopeful mothers, fathers, brothers, sisters, grandmothers, carers of autistic children and adults, many angry and frustrated to have their words and thoughts twisted by self-proclaimed ND representatives, unable to understand which part of “severe autism” can’t these “inclusion and diversity” vigilantes understand?!

I also met the counter-hijackers, same sort of self-proclaimed experts, mostly of their hate and bitter dissatisfaction with life’s immutable unfairness, living of the margins of counter-arguing every shade of neurodiversity they could find, throwing out in an identically destructive frenzy, not only the “baby with the bath water” but the bathtub as well.

And then, I finally understood, my life’s twisted entanglement with a condition I tried beyond “accept” to love…

A “love triangle” sort of relationship with neurodevelopmental conditions which claimed a brilliant mind, with physical conditions which claimed for daily torment my talented body, shaping who I am, hardly ever getting to know whom I should or could have been, or who my destroyed by alcohol, neurodivergent asocial father could have been, or who my benzodiazepines dependent neurodivergent mother could have been, or who my hero partner of 26 years, severely neurodivergent wife could have been, fiercely doing all I can for my neurodivergent children to become the best they could be …

I realised that I have desperately tried to consciously legitimise the subconscious, Stockholm Syndrome attachment to my Autism, to make all the suffering it caused a “love story”, forgetting that from Romeo and Juliet to Hiller’s Love Story, death and suffering rip afresh the deep wounds and scars of all such stories.

I sadly understood that, exactly as in the trading of my liberty in exchange for an only hoped religious absolution from guilt, my efforts to “love” my autism were nothing else but desperate attempts to transform accept and tolerance, into romance…

Wandering deeper, I must ask the hate-magnet question: “Is the derailed part of the Neurodiversity “movement”, with its priestesses and priests preaching and demanding acceptance, while ostracising anyone and all questioning them and/or their motives, their agenda and their Autism narrative representation validity, a real example of a double Stockholm Syndrome, where autistic individuals desperately want to love something which has probably taken away more from their lives than what it gave them, being further afraid to think and speak for themselves, for fear of having the (remember?) breadcrumbs of an illusion of belonging taken away from them”?

The reason I’m extrapolating my own existential struggle, is having worked with, taught with and been with diagnosed autistics clearly going through such soulquakes more or less openly, yet afraid to break free from this double attachment?!

I accept myself as disabled.

I “love” myself in spite of my disabilities.

But no one should expect me to love my disabilities.

I tolerate my disabilities trying to rearrange my life around them, in order to allow myself the space to live, create and care; for as long as I can.

So, what now?

I know that both the Neurodiversity side and the Severe Autism and Autism Parenting side have at their cores brilliant individuals surrounded by even more brilliant individuals, tired of being misrepresented by abusive mobs of questionable entities, diagnosed or not, causing more and more harm to a silent, often unseen majority.

Isn’t it high-time to bridge the shameful divide with a dialogue and alliance of interests already thought of, necessary to advance a unified agenda of making living with autism, a life beyond mere survival?

How? By listening instead of judging and by supporting instead of policing.

Because I can’t love autism, but I can respect and care about us.

There should be more to our neurodivergent lives than breadcrumbs…

Restructuring the Autism Spectrum Disorder Narrative around the Core Symptomatology of Asperger’s Syndrome and High Functioning Autism

Museo_del_Prado_-_Goya_-_Caprichos_-_No._43_-_El_sueño_de_la_razon_produce_monstruos

[Rev.] Romulus Campan FDScMH, LTh(Hons), CertEd, QTS,
PgCert Religion, Spirituality & Mental Health
PgCert Special Psychopedagogy,
PgCert Autism & Asperger’s

“The theoretical understanding of the world, which is the aim of philosophy, is not a matter of great practical importance to animals, or to savages, or even to most civilised men”.
Bertrand Russell

Keeping in mind my Theoretical Philosophy positional disclaimer, I have arrived at the point of my scientific inquiries, where, theories of intersecting dimensional planes aside, I must allow a superfluity eradicating convergence of objectivity in the Autism narrative, which should dethrone impostor monsters, born as painted by Goya, from the minds asleep of scientists, and subsequent masses of dilettantes.
However, in all its simplicity, the Autism narrative’s only problem, is the underlying conflict fuelled by what has become known as Learning ≠ Intellectual Disability (e.g. Dawn, Fragile X syndrome, etc.), formerly Mental Retardation. I have deliberately used the non-equal sign, as a form of silent, dignified and resigned protest, against the frustratingly careless use of Learning Disabilities (rebranded now as Learning Difficulties) which shouldn’t encompass more than reading disabilities, written language disabilities, and mathematical disabilities such as Dyslexia, Dyscalculia, Dysgraphia, also Dyspraxia which has a profound impact on perception, therefore all afore enumerated.
I do respectfully understand and acknowledge why it may be emotionally less intrusive to use Learning Disabilities instead of the Mental Retardation reminiscent Intellectual Disabilities, however, subjective rebranding in the name of political correctness does never change objective inherence. And obviously, this isn’t influenced at all by the fact that Intellectual Disabilities could co-occur with Learning Disabilities, with the former having at the core a genetic or traumatic incapacitation of the brain to process/convey information, while the later are the brain’s non-typical modalities of processing/conveying information, caused by its structural and functional differences.
The Autism narrative therefore, must once and for all, separately consider Intellectual Disabilities, regardless of common identifiables, present at the time being, in what is reluctantly acknowledged as Low Functioning Autism, or more recently, “courtesy” of DSM 5, as Severity Levels 3/2 of ASD.
Now as a tangent thought, I must mention my genuine concern that this ‘reluctance’ has morphed unfortunately in the contemporaneous trend called “Neurodiversity” which has long left its Neurodivergence gathering meaning, home for ASD, Dyslexia, Dyspraxia, Tourette’s etc., having mutated from initially a High Functioning, Asperger’s Autism forum, into a “HF/Asperger’s Autism plus…” stage, for an alarmingly increasing number of “self-ID(Dx) autistic”, more probably narcissistic individuals, unhappy of their probable Personality Disorder traits. These share the stage with the “thinking for myself may hurt + OMG, OMG, you’re so wrong…” vigilante crowd, the “stuck in-there, too proud to admit this is wrong” rather silent minority, and the “more-or-less personal, but good business” opportunists.
Returning briefly to DSM-5, I certainly appreciate the following clarification/condition:
“E. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be below that expected for general developmental level” (emphasis mine). However, the statement’s last sentence, seems in my opinion to rather seriously muddle the already dark waters of practically understanding what the expected level of general development would be, in case of Intellectual Disability.
On a further thought, comparing symptoms of ID/IDD with symptoms of ASD, the similarities are beyond a reasonable horizon of reassurance that the two conditions wouldn’t be misdiagnosed for each other. Because if anyone is naïve enough to look for repetitive behaviours and/or communication deficits as some sort of failproof sign of ASD, let them be reminded that stereotyped, repetitive behaviours are also typical for passive traumatic experiences such as external stimuli deprivation, just to mention one…
Without even attempting to explain beyond theoretical philosophy the reasons for my suggestion, I propose as a valid and beneficial alternative to the present epistemo-semantic chaos, that the Autism Spectrum should selectively integrate what has been previously known as Asperger’s Syndrome and High Functioning Autism, hoping that Autism research would resume the vital dialogue of identifying specialised diagnostic patterns for the core aspects of both.
Unfortunately, otherwise, the very real and oftentimes devastating, Intellectual Disability or Intellectual-Disability-identical criteria, will continue to overshadow and therefore ignore the maybe less visible but drastically life shortening symptoms of Autism.

Theoretical Philosophy, a Disclaimer…

bertrand-russell-philosopher-the-theoretical-understanding-of-the

Standing alone at the midnight crossroads of thought may be frightening.

No one knows who’s coming, bargaining belonging for one’s liberty of mind.

Alone however, doesn’t mean lonely, until there’s a clarity of purpose, bitter rooted in an effort to achieve through learning, forward looking onto a more palatable reward of understanding.

Theoretical philosophy irreverently surpasses other means of cognitive inquiry, through its sworn allegiance unto nothing but its fountainhead. Iconoclastic, crude, unfaithful, are only glimpses into its free mind.

Therefore, if the reader henceforth seeks referential justifications for my own thoughts, let them engage themselves alone into such endeavours, as I reserve myself the right to provide or not references, being under neither Harvardian nor any other arbitrarily imposed academic structural policing rules.

Because I believe that in essence, freedom at an age of consent is never taken away, but ultimately given; and I refuse to yield…

“It is right that we ask [people] to accept each of the things which are said in the same way: for it is the mark of an educated person to search for the same kind of clarity in each topic to the extent that the nature of the matter accepts it.”
Aristotle, Nicomachean Ethics, 1 1094a24-1095a

The Cognitive-Behavioural Interpretative Isolationism of Intellectually Proficient Kanner’s & Asperger’s Autism (IPKAA)© Part 2 – Arbitrarily Set Standards of Executive Functioning

Part 2 – Arbitrarily Set Standards of Executive Functioning

By Rom Feldmann© FdScMH, LTh(Hons), CertEd,

PgCert Special Psychopedagogy,

PgCert Autism & Asperger’s, QTS

 

– The Theory of Executive Dysfunction

            ‘Executive function is an umbrella term for functions such as planning,       working memory, impulse control, inhibition, and shifting set, as well   as for the initiation and monitoring of action.’ (Hill, 2004, 1)

Hill states that in order to guide actions, these functions need to disengage from the immediate environment, which seems to suggest that at least part of an Executive Dysfunctionality has to present as an impairment of an autistic’s ability to disengage from the object/subject of their immediate environment’s single focus and shifting their attention to possible prompts by external stimuli.

However, I would question the axiomatic assumption that an apparent non-responsiveness to external focus-shifting prompts must be seen as an ‘impairment’, since such an assumption would imply a standard, focus-shifting expectation to all incoming external stimuli, mandatory for all, as a pre-requisite of a social interaction expectation singularity, a universal norm.

Judging such a perceived non-responsiveness as some pathologically uncontrollable ‘aloofness’ is a dangerous, a priori inconsideration of an autistic’s right to wilfully accept or reject incoming stimuli, regardless of their animate or inanimate origins. Autistics, as anyone else, have the fundamental right of deciding without any obligation to justify their choice, to accept or reject anyone’s, verbal or otherwise, approach.

Given the fact that most “Intellectually Proficient Autistics©” have an upper-level thought process best to be characterised as an intense continuum, would render approaches as unsolicited intrusiveness, met with and honest and non-dissimulated  disinterest or silent/verbal rejections. Justifiably, disrespectful insistence is oftentimes perceived as aggression, which could lead to provoked shut- or meltdowns. It is unfortunate that these provoked episodes with extremely distressful consequences are not considered or classified as physical and/or emotional abuse or in many cases, assault.

The other aspect of this theory (Frith et al, 2010, p15 footnote) is an analogy with neuropsychological patients displaying impaired executive functions caused by frontal lobes damage, suggested by similar ‘frontal test’ results produced by these subjects and individuals diagnosed with Asperger’s syndrome and high-functioning autism.

Again, validating such a theory ignores an autistic’s volitional selectivity, leaving us either presumably brain damaged, or without any control over some pathological compulsions.

The question however, the genuinely disturbing question is: who decided  what the ‘standards’ of executive functionality are, and why divergence from these ‘standards’ must be viewed as “impairment” or “pathology”?

A possible answer is as disturbing as the question: the decision was most probably taken by neurotypical gatekeepers, interested (consciously or not) in establishing, further maintaining easily controllable, rigidly normative societal structures, leaving most population subject to a mass Stockholm Syndrome, using arbitrarily imposed societal ‘norms’ as means of compliance control, rewarded with nothing else than randomly refrained law enforcement harassment, disguised as ‘protection under the rule of law’.

Pathologising on grounds of superficial behavioural observations and biased evaluation premises, “Intellectually Proficient Autism & Asperger’s©” (IPAA©) individuals, is nothing more than attempts to control the innate proneness to logical judgement and justice, oftentimes displayed by IPAAs deeply involved and attached to protecting the vulnerable, fact also clearly backed by Tony Atwood  (Wylie et al, 2016, pg. 12)…

Pathologising our dedication to equality is a sad and dangerous attempt to devaluate justice into a law enforced pragmatic utilitarianism, reminiscent of malthusianism…

(to be continued…)

 

-Frith, U. (Ed.), Asperger, H., Wing, L., Gillberg, C., Tantam, D., Dewey, M., Happé, F. G. E., (2010). Autism and Asperger Syndrome. Cambridge: Cambridge University Press

-Hill, E. L. (rev. 2004). Evaluating the theory of executive dysfunction in autism.  http://research.gold.ac.uk/2560/1/hill_devrev04_GRO.pdf accessed 10.01.2018

-Hill, E. L. (2004). Executive dysfunction in autism. TRENDS in Cognitive Sciences Vol.8 No.1, January 2004, 26 http://www.ucd.ie/artspgs/langimp/autismexecdysf.pdf accessed 10.01.2018

-Wylie, P., Lawson, W. B., Beardon, L., (2016). The Nine Degrees of Autism, A Developmental Model for the Alignment and Reconciliation of Hidden Neurological Conditions. Hove and New York: Routledge