Monthly Archives: June 2019

“Autism Spectrum Dependency Classification System v 1.0” -proposal-

[Rev.] Romulus Campan, FDScMH (Forensic), LTh (Hons), CertEd, QTS,
PgCert Religion, Spirituality & Mental Health,
PgCert Special Psychopedagogy,
PgCert Autism & Asperger’s
Chair, Disability & Neurodivergence Staff Network – BSMHFT

Previous attempts to classify the Autism Spectrum (AS), failed to understand the ‘trees’ within the ‘forest’ of unknown dimensions, which has become generally known as Autism Spectrum Disorders.

I am unwilling to concede ‘disorders’ to ‘conditions’ simply because after countless episodes of bullying and harassment from mostly ignorantly unqualified individuals and groups, in this case having found in their “autism activism” a venting platform for complex seemingly psychological issues, I have decided to initiate and maintain liaison only with academically and/or experientially qualified entities, willing to participate in existing efforts to rescue and restore the Autism narrative from the chaos caused by such incompetent “movements” and individuals, the vast majority of whom have spawned from Judy Singer’s disastrous, “NeuroDiversity” brain-child, born as an “idea” explained by the book’s Amazon abstract as follows:

“The word itself was just one of many ideas in this work, her 1998 Honours thesis, a pioneering sociological work that mapped out the emergence of a new category of disability that, till then, had no name.” (italics mine)

Surprisingly, however, as I have detailed in a previous essay, Singer’s careless inference with the medical field mutated into an increasingly conflicted understanding of disability, revealed in a recent article as “The problem with the expression “People with Neurodiversity” is that it turns Neurodiversity into the latest fashionable synonym for Disability.”

The necessity to re-classify the AS should be obvious to all ‘navigators’ of a “system” which could be best depicted as a beach playground where infantile participants more and more aggressively, try to destroy and rebuild their newer and newer sand-castles of a derailed activism, fortunately washed away by oftentimes feeble, but nevertheless professionally and/or experientially much more accurate attempts to defend the Autism narrative from becoming another defunct sociological experiment.

The real reason in my opinion for this constant threat for the wellbeing of millions of autistic individuals and their families worldwide, including my own, is the collapse of observational behaviourism as exclusive instrument in understanding Autism from its ontogenesis throughout its lifetime progression, having left behind a Medi-Social Model identifiable void, where oftentimes hazardous and dangerous psychiatric interventions are being argued against by an equally hazardous reactivist revisionism, frightened apparently that “as long as autism – which is not a mental ill-health condition – remains in the psychiatric diagnostic manuals, there will continue to be those who use this to justify their attempts to find a cure.” (italics mine) (Chown & Leatherland, 2018).

I cannot, in all honesty, understand how and why would 25 autistic individuals, many of whom academics, be afraid that millions of individuals with autism, living themselves, their families and/or care environments under the constant threat of self-harm, wandering and uncontrollable violence, would be offered a treatment, a cure?

I have developed the Autism Spectrum Dependency Classification System, as a response-proposal against the confusions caused by the changes in the past years to the two, main disease categorisation systems, the DSM and the ICD, also the chaos in the less formal use of “functionality-based labels”, the now literally demonised HFA or High-Functioning Autism and LFA or Low-Functioning Autism.

As I have already hinted throughout my social-media presence, I consider dependency the most practical means of conveying the level of functional autonomy of an Autistic -or any other- individual, integrated with a simple, universally applicable sub-categorisation system, by which dependency is in direct proportion with the identified comorbid symptoms, as an individualised, non-numerical quotient of support needed for the maximum achievable autonomy.

By using the concept of “comorbid symptoms” I acknowledge Autism as a monolithic disorder featuring the below explained intellectual/mental, neurodevelopmental, physical and mental-health/psychiatric conditions not as independent co-morbidities (regardless of their also non-autistic existence), but as comorbid symptoms sharing origins simultaneously or developmentally with their Autism root.

The following codes have been used:

ID/MR – Intellectual Disability / Mental Retardation

LD – Learning Disabilities: Dyslexia, Dyspraxia, Dyscalculia, Visual Stress Syndrome, SPD (Sensory Processing Disorders), Tourette’s Syndrome, etc.

PHD – Physical Disabilities (observable and/or non-observable): Motor-functional (Fibromyalgia, CFS, Spinal Disorders, MS, etc), Diabetes, Metabolic Syndrome, etc.

MHD – Mental Health Disabilities: Clinical Anxiety & Depression, B/EUPD, Pathologic Demand Avoidance, etc.

ASD Dependency Cat System

I am publishing this first version of my proposal, relying in all honesty on my personal, academic and professional integrity in regard to having created this system without any deliberate intention to copy or otherwise unethically inspire from anyone else’s previously published thoughts or ideas. Should the reader have any questions or concerns about this, I would respectfully appreciate being informed about it, to address any issue as soon as possible.

This initial proposal version wishes to become a collaborative effort with -as previously mentioned-academically and/or experientially qualified peers. Should you be interested in collaborating, please DM me at https://twitter.com/Rev_Rom_ASD, keeping in mind that I reserve myself the right to extend any further collaborative invitations.

 

Advertisements

Neurodiversity, or “The Theory and Practice of Oligarchical Collectivism” -Proposing the “Medi-Social© Model of Disability and Neurodivergence” III-

wpid-picsart_1394741341754.jpg

One of writing’s most complex hurdles is leaving one’s “body” to immerse in the dream within dream of creating a structure for a world somewhat different than the original.

In the dystopian nightmare created by Orwell, Emmanuel Goldstein’s “book” becomes the embodiment of Winston’s hope that his participatory complicity in changing the past to suit a power-dependent, fluid future, will be forgiven, first of all by his own, desperate, depleted, sick, hungry and frightened self…

History has proven over and over again, that “Ignorance is Strength”; that the more “society” needs to ascend to a higher level of “consciousness” the easiest way is through what has become known as “purges”, or the “natural selection through the survival of the fittest”. This is what binds together Thomas Malthus’ theory of passive purge of the weak and vulnerable and Mao Zedong, architect of the murderous “cultural revolution” purge. The “fittest” will decide the means through which the less fortunate may be left, or helped to remain silent…

For some time now, the cult like “neurodiversity movement” has been going through a desperate process of finding any meaning in Singer’s frankensteinian, biodiversity inspired monstrosity. Waves upon waves of more or less well-meaning scientists of mostly non-medical sciences, ridden by more or less derailed individuals and their cohorts, are competing in a sinister race to purge a past they neither understand, nor desire to understand, from anything standing in their way to re-build something for which they have no plans whatsoever…

For some yet cloud shrouded reason, the #NDcult has chosen Autism as their main re-constructionist experiment, probably for the simple, utilitarian reason of being a still unknown disorder, having nevertheless the attention of a spotlight large enough to illuminate their narcissistic egos. And to ensure that ignorance is being further strengthened, they have ever since remembered to pay lip service to other dyslexia, dyspraxia and neurodivergent disorders, relabeling them as evolutionary achievements, “simple variations” of our brains.

As for the “what shall we do with the severe autism part”, the #NDcult has re-branded everything and anything ill-fitting their “geek syndrome”, as comorbidities to be dealt with by the medical professionals ostracised by neurodiversity sociology’s relentless “de-medicalising” and “de-pathologising” purges. Parents and carers of non-geek Autistic individuals have also been targeted for every politically incorrect attempt to express their frustration, pain and desire for finding scientifically valid treatments for their loved ones, being trampled in the mud of the vilest sub-human abuse.

In a recent tweet, @stevesilberman made valiant proof of why neither investigative journalism, nor a career in law should lead the way in shaping the future for millions of people with Autism worldwide. Because if he really meant writing, that “This whole thing is one of the most powerful statements of what ‘neurodiversity’ really means” as an introduction to Tay­lor-Park­er’s following idea, neither of them has any idea of what an IQ 30 means:

“Neu­ro­di­ver­si­ty isn’t an idea whose use­ful­ness is lim­it­ed to peo­ple who are “high func­tion­ing” or “just quirky” because it inher­ent­ly looks at peo­ple who will have exten­sive, expen­sive sup­port needs for the fore­see­able future and asks how we can help these peo­ple build the best pos­si­ble lives for them­selves. Neu­ro­di­ver­si­ty looks to every idea, tool, and prac­ti­cal solu­tion it can lay hands on to answer the ques­tion of how to have a good life with an IQ of 30, exec­u­tive func­tion­ing dif­fi­cul­ties, schiz­o­phre­nia, no ver­bal speech, or all of the above. Where med­i­cine is stumped, and the peo­ple affect­ed may not even want a “cure,” neu­ro­di­ver­si­ty draws heav­i­ly on the social mod­el of dis­abil­i­ty to offer some­thing unique: hope”.

To clarify what an IQ 30 really means, allow me to use as an example the details provided in the former DSM 4 TR:

“318.1 Severe Mental Retardation: IQ level 20-25 to 35-40 (accounts for 3-4% of retarded population). The group with Severe Mental Retardation constitutes 3%-4%of individuals with Mental Retardation. During the early childhood years, they acquire little or no communication speech. During the school-age period, they may learn to talk and can be trained in elementary self-care skills. They profit to only a limited extent from instruction in pre-academic subjects, such as familiarity with the alphabet and simple counting, but can master skills such as learning slight reading of some “survival” words. In their adult years, they may be able to perform simple tasks in closely supervised settings. Most adapt well to life in the community, in group homes or with their families, unless they have an associated handicap that requires specialized nursing or other care. (emphasis mine.)

May I ask anyone for that matter, which part of this DSM quote would offer any incentive for someone to believe that individuals living on this severe end of the Autism Spectrum, could ever “build the best pos­si­ble lives for them­selves”? Because “closely supervised settings” have little do with either autonomy or independence! And why would anyone want a severely disabled, highly dependent individual to build such lives for themselves, when the first call should be the warmth and dedication of their own families to help and assist them, except for when that would be practically impossible? Unfortunately, submitting the article to a simple search for words such as “family/families” returned a disappointing “no results”. However, reading the article I was shocked to find the opposite of what a family should stand for, which is “filicide”, “the deliberate act of a parent killing their own child” …

I am not going to apologise for asking, but what sort of mentality would drive anyone to write an entire article where the only reference to family is a concept on the criminal opposite of what a family should be?

Indeed, as suspected in the beginning, the strength of “neurodiversity” as a “movement”, seems to be its obnoxious ignorance summarised in: “accept the fact that med­i­cine doesn’t have an answer to neu­ro­log­i­cal vari­ety” and most important, “accept­ing that peo­ple are peo­ple, and, love it, hate it, or feel ambiva­lent about it, there is no cure today.”

Is this the “future” of “gold” so fiercely advocated by neurodiversity, the fatalistic view that if “there is no cure today” there won’t be one tomorrow? Is this the reason why neurodiversity is so hell-bent in “de-medicalising” and “de-pathologising” autism, campaigning against vital, life saving medical research about the complex neuro-physiopathology of Autism and its comorbidities, so brazenly called “quackery” by some neurodiversity proponents?

Let me ask in a non-delegated, but implicated way, what shall we do, all clinical professionals from countless fields of medical, health and care sciences? Throw away our passion for being better providers, to the best of our capabilities, of anything and everything could make the lives of people with autism, dyslexia, dyspraxia, Tourette’s, epilepsy, seizures and many other aspects of probably the same, most complex neurodevelopmental disorder, and embrace “neurodiversity” with its utter misunderstanding of the social model of disability? As I have said many times, myself and all clinical professionals I know, work closely together with our dedicated social work colleagues, in multi-disciplinary teams sometimes desperately trying to ensure equitable opportunities to everyone in our care. And we are far from perfect, but I have never heard any of my clinical colleagues talking about “de-socialising” our teams, or our social work colleagues about “de-clinicalising” them?

No, not by any chance…

Returning to my title, I must reiterate my surprise to have realised that the neurodiversity movement is indeed collectivism, with a structure of unquestionable allegiance to its oligarchically maintained “ideology”, which in their own words rests on two major principles. The 1st principle is “Every­one gets the same basic rights”, the 2nd being “There are no excep­tions for label, IQ, or degree of sup­port needs”. By the way, please don’t approach me with diversions such us “why haven’t I read everything in context”! I did, again and again, just to have become unwilling to suffer any longer the inflicted intellectual distress…

I will conclude with another statement which seems to be the essence of what neurodiversity is, and its effects on a society maybe expecting more help instead of even more suffering:

“Neu­ro­di­ver­si­ty is an idea for strong peo­ple, as it bites and claws at every­one who embraces it.”

And I can confirm with my own life and experience, that “neurodiversity” and its cult-like movement has left me with nothing but bite-marks and claw-scars since the day I “embraced” it.

Because if one’s strength is their ignorance, their peace will be a war against themselves and ultimately others.

Remember nevertheless, that ultimately, the real victims of all wars are not the strong, but the vulnerable…